Sjögren’s Ireland are actively involved in research on Sjögren’s disease. We believe it is vital that the patient’s perspective is incorporated into research design and publication.

• Beyond dry eye: The greater extent of Sjögren’s systemic disease symptoms, the impact of COVID-19 and perceptions towards telemedicine identified through a patient co-designed study – Health Expectations (2023)

• Use of complementary and alternative medicine (CAM) among people living with Sjögren’s: a cross-sectional survey using a modified international CAM questionnaire (I-CAM-Q) – Rheumatology International (2025)

Magazine and News Articles:

• “Sjögren’s patient advocate writes an article with RCSI researchers” – Health Professional News Magazine (2021) page 53: https://issuu.com/ipncommunicationsltd/docs/hpn_october_digital_version
• “Researchers working to increase awareness of Sjögren’s Disease among healthcare professionals” Irish Medical Times : https://www.imt.ie/clinical/webinar-on-sjogrens-syndrome-brings-together-specialties-involved-14-07-2021/