International:

Our Patient Community

The heart of Sjögren’s Ireland is our wonderful patient community. Our WhatsApp community is an incredibly supportive and insightful group. With members from across Ireland, it is a space to share experiences and ask questions with those who understand the reality of living with Sjögren’s disease. The group is aimed at those living in Ireland who have Sjögren’s, who have suspected Sjögren’s, or who are caring for someone with Sjögren’s. If you would like to join our group, you can contact us here.

Our Irish Community

Royal College of Surgeons of Ireland : we have partnered with RCSI on projects such as SYNERG-IE , PPI Ignite, webinars, and in person events. We also work closely with their School of Pharmacy and Biomolecular Science to increase medical students’ understanding of Sjögren’s .

Women in Vision and Eye Research Ireland

Our International Community

Sjögren Europe : We are delighted to be a member of Sjögren Europe. Sjögren Europe is a European federation of national associations representing Sjögren’s patients. Its purpose is to get more visibility, attention and solutions for Sjögren’s by promoting the advancement of knowledge, research, information, treatment and care, by fostering patient involvement and participation in the scientific research, medical, health and political institutions, pharmaceutical industry and social areas, and by increasing awareness about Sjögren’s at all levels.

International Sjögren Network : In 2009, the International Sjögren’s Network (ISN) was established by 15 organizations that met in Brest, France, at the 10th International Symposium on Sjögren’s.

This symposium, which brings together researchers and clinicians from around the world, also was an opportunity for patient groups to meet and discuss how best to collectively work together to increase awareness and services for Sjögren’s patients worldwide.

Ireland:

Projects and Partnerships

Sjögren’s Research Ireland : Scientists from the Ocular Immunology Research Group RCSI, experts in public patient involvement and Sjögren’s patient advocates are working in partnership to improve healthcare and help shape Sjögren’s Research in Ireland

SYNERG-IE : Improving care for people with Sjögren’s Disease by advancing education, policy and practice. This programme is funded by the Health Research Board APRO-2023-28.

INNOVISION : Advancing Ocular Innovation. Innovative Ocular Therapeutics through Engagement and Interdisciplinary Vision Research (INNOVISION) is a Horizon Europe MSCA-COFUND programme led by SETU.

Our Sjogren’s Ireland community: