Keep up to date with our recent news and events
📅 Saturday, 22 November 2025
🏛️ RCSI Dublin & Online
Join us for “Transforming Sjögren’s Care Together” – our annual knowledge exchange event!
This free event brings together patients, healthcare professionals, and researchers to:
✨ Hear from expert speakers, rheumatologist Dr Natasha Jordan and ophthalmologist Dr Emily Greenan
🔍 Discover new findings from the SYNERG-IE research team
💬 Share experiences and ideas to improve care for people living with Sjögren’s
We encourage in-person attendance where possible to make the most of networking and discussion, but understand it’s not feasible for everyone. Whether you join us in Dublin or online, your participation matters.
👉 Register now through the link in our bio
🎓 2 CPD credits (RCSI CPD Approved) available for in-person HCP attendees
Please contact Alanna Drury alannadrury@rcsi.com if you have any questions.
SYNERG-IE Sjögren’s patient Survey
The SYNERG-IE Sjogren’s patient experience survey has launched today June 3rd. It asks about patients’ experiences of living with the disease, such as the financial burden, healthcare services, and medications. Your participation is vital, as a larger number of responses will lead to stronger and more reliable findings. We hope that the results of this survey will help us to advocate for better Sjögren’s services in the future.
Online coffee morning
Saturday 14th June — 12-1.30pm
A chance to chat and connect with our community. Open to all members of our Whatsapp community group.
Webinar now online
On the 24th of April, SYNERG-IE and Sjögren’s Ireland co-hosted a webinar titled ‘Transforming Sjögren’s Care Together — Insights on oral health and findings from a survey on alternative therapy use in people living with Sjögren’s’ to mark Sjögren’s Awareness Month 2025. Speakers included Jude Coughlan (SYNERG-IE PPI Panel Member), Eleanor O’Sullivan discussing oral health & Sjögren’s, James Barlow sharing findings from a survey on alternative therapy use, and updates from Gráinne Tynan, the SYNERG-IE Patient Representative Researcher and Sjögren’s Ireland Co-founder.
Resources
Check out our new page of useful links for those living with Sjögren’s disease, including wellbeing and mental health resources.
Podcast with Arthritis Ireland available now
Season 4 – Episode 2: Spotlight on Sjögren’s disease
Delighted to share that Gráinne Tynan from Sjögren’s Ireland and Dr Joan Ní Gabhann-Dromgoole RCSI participated in a recent podcast with Arthritis Ireland shining a light on Sjögren’s Disease as part of their Inflammation Nation series.
Sjögren's Ireland 